IT News
Imphal, Dec 28:
Regional Institute of Medical Sciences (RIMS), Imphal today successfully organized a one-day training program on “Capacity Building on Rare Diseases” at Sushruta Hall. The program aimed to enhance awareness, diagnosis, and treatment strategies for rare diseases, equipping healthcare professionals to address associated challenges effectively.
Prof. G. Sunil Kumar Sharma, Director of RIMS, inaugurated the program, emphasizing early diagnosis, improved treatment protocols and collaborative efforts to combat rare diseases. The event featured presentations by distinguished speakers, including Dr. L. Swasticharan, Additional DDG & Director EMR, MoHFW; Dr. Kuldeep Singh, HOD Pediatrics, AIIMS Jodhpur; Dr. Amita Moirangthem, Associate Professor of Medical Genetics, SGPGI Lucknow; and Dr. Aastha Chugh, Technical Consultant (Rare Diseases), WHO India.
Sessions covered the National Policy for Rare Diseases, care challenges, opportunities, and the hub-and-spokes model for addressing rare diseases in India. Prof. Ch. Shyamsunder Singh, HOD Pediatrics, RIMS, discussed regional strategies for tackling rare diseases.
Additionally, RIMS hosted an expert panel from December 27-28, 2024, to evaluate its readiness for designation as a Centre of Excellence (CoE) for Rare Diseases. The panel conducted compliance verification, facility inspection, and reviewed capacity-building initiatives with discussions focused on prevention, treatment strategies, and replicating successful models from AIIMS Jodhpur and SGPGI Lucknow.
RIMS reaffirmed its commitment to advancing rare disease care infrastructure. Recommendations from the panel will guide preparations for CoE recognition, strengthening RIMS’s role in rare disease management and research.
The program was attended by the Nodal Officer for Rare Diseases and rare diseases committee members of RIMS, Imphal; the State Nodal Officer (Rare Diseases), Manipur; the Nodal Officer for Rare Diseases at JNIMS, Imphal; representatives from all concerned departments at RIMS Imphal and JNIMS, Manipur; Dr. B. Nanaocha Sharma, Scientist E, IBSD Manipur; Dr. H. Nabakishor Singh, Consultant Plastic Surgeon, Shija Hospitals; the President and Secretary of the Pediatric Association of Manipur; and the President and Secretary of FOGSI, Manipur State Chapter.
